Some
of you are probably curious how I get certain things accomplished, so I thought
it would be helpful to share certain tools of the trade and the skills you acquire when
you're living in a wheelchair.
First
of all there's the wheelchair itself. Mine is a Permobile M300 and it is quite
a thing to behold (a cobalt blue body with black trim). Important features
include the high-tech seat with dozens of separate but interconnected
pressurized air cells that gradually shift air back and forth as you lean this
way and that, which makes for incredibly comfortable seating (of critical
importance when you're in the chair 16 hours per day). Three electric
motors control the chair's angle of repose, and you can adjust the leg support
and the back rest from a sitting position to nearly horizontal; haven't
done it yet but it would be easy to take a nap in this thing. A separate motor
drives the wheels, and the battery holds enough juice for up to 10 miles.
You can adjust the sensitivity of the joystick direction & speed
controller to move with more dexterity in tight quarters and otherwise to power
up when you're out on the street.
Eventually
you've got to get out of the chair---like when its bed time---and how does that
work? Well there's this thing called a transition board. You tuck one end
underneath you and you set the other end on the thing you want to transition
to, and then you do this miraculous skootching motion, where you defy
gravity for a fraction of a second while you slide/hop your butt along the
board without placing any weight on your feet or hands. Takes practice to
keep both ends of the board in place and to keep your balance on the way.
So
you've transitioned into bed and drifted off to sleep, but eventually you're
awakened with the need for a bathroom break. Are you going to set up a
transition and roll to the bathroom? No way! Enter the portable urinal, an
oblong plastic bottle with a wide mouth and a handle for easy manipulation. I
don't know how this works for women but for men it's a fairly straightforward
deal; just position the urinal and take care of business. Of course it's very
important to have a secure place to set the urinal after use and you never
want to fall asleep without first moving the urinal back to its secure
position. Messes ensue otherwise (or so I'm told)! This portable urinal
trick works throughout the day to avoid having to transition to a toilet.
Eventually
though you'll need to transition to a toilet which isn't a big deal as long as
you have another transition board ready at hand. One thing to consider though
is the amount of time it takes to set up and execute a transition so you've got
to be extremely aware of your body's internal time clock and anticipate the
need because you really can't afford to be 20 seconds late. Everyone has
their own means of getting things moving but I have found a couple cups of
coffee and a couple of prunes first thing in the morning insure that I've
taken care of business before it's time to leave for work, which is actually
kind of critical for me because I commute via Metro bus for over an hour and I would be totally SOL if urgency struck while commuting.
Rolling
the tape back several weeks---right after the surgeries---while still bed
ridden and with arm casts up to your shoulders, your only strategy is to endear
yourself to the assistants who bring the bedpans and clean you up afterwards.
But once the casts are off and you or able to transition to a toilet all
by yourself you are not necessarily completely in the clear. If your wrists are
still fixed in place with plates & rods for example, then there are certain
places that you just can't reach unaided. Enter the bathroom buddy
device. This little guy is worth its weight in gold! It is a curved
plastic handle with a paper grabber on one end and it totally solves the
inflexible wrist problem. Just don't drop it while in use, as it's not so
easy to retrieve and kind of messy even in the best case.
No
doubt you're going to unintentionally drop things (hopefully not in a toilet)
so you need a means of retrieving them. The Grabber is a two foot long hollow
aluminum pole with a handle and trigger on one end and a little grabbing device
on the other end. You will get really good at using the grabber (just don't
drop it)!
Hmmm,
so what other tools are there? I use a 20 liter summit pack (Zero Point by
Montbell) to carry odds and ends while motoring around in the wheelchair.
Inside the pack resides a waterproof poncho and a puffy jacket with
enough room remaining to carry food for the day. I use Seattle Metro to
get just about everywhere beyond a five minute roll; if I lived in a town
without public transit mobility would become expensive very quickly. Oh,
. . . and I use voice recognition on a tablet or phone to create blog posts
like this or any other longish email, text, or other virtual message.
Typing? Not.
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